Showing posts with label Health Insurance. Show all posts
Showing posts with label Health Insurance. Show all posts

Tuesday, November 22

Health insurance disappointment

I was so excited to find out that there are Medicare plans offering dental and vision coverage. I called for more information and after talking with the Medicare representative almost an hour about our needs, we settled on two companies to compare, Horizon and Bravo. Medicare sent a more detailed report about the two companies.

Meanwhile, I contacted our doctors and found out that all of them take Horizon. Not all of them took Bravo, though, nor did a hospital we use and so that was a deal breaker. When the reports came, we focused on Horizon and read through it carefully. It sounded good.

Right now, TB and I each pay over $200 to our current secondary carrier, $96 to Medicare and $36 to our prescription plans. With Horizon, we'd pay $84 a month and then $96 to Medicare. We'd save quite a bit of money. A drawback was that specialists' co-pay would be $35 and TB sees a few specialists a month. Okay, so that would eat up our savings but, hey, we'd get vision and dental! I contacted Horizon and asked for their benefits book and some applications.

The books arrived yesterday and TB and I were taken aback and confused. The dental and vision plans are very limited. For instance, with vision you pay up to $35 for the exam and then they cover a max of $100 toward glasses every two years. That's fine for someone who doesn't have involved prescriptions like TB and I do. Our glasses are, minimum, about $300 each. Still...maybe we could save up. And then we looked at the dental plan. There's a $35 co-pay and then you pay for each additional service. A filling would be $56. A root canal (which is what TB needs) is $661. Crowns cost $1000 and up. There's no way we could pay for these things.

On top of that, there's a $150/day for 10 days co-pay on hospitalization. That was the deal breaker for me. With everything we have going on, I couldn't say we wouldn't be in the hospital for a surgery or something. There is absolutely no way we'd be able to pay that bill.

I am so bummed. TB and I have talked about it and talked about it and it doesn't really look like it would be in our best interest to switch. We could stick with our company and have no co-pays and full coverage. We would have to save for a year to afford getting glasses or our teeth fixed, though--if then. Other emergencies keep popping up.

This is yet another reason I totally support health insurance reform. Too many people either don't have it or have really limited benefits and then are screwed when something goes wrong. Oh well. Having dental and vision insurance was a nice dream while it lasted. :(

Thursday, November 17

Thursday Thirteen and a bad day!

Thursday 13


I got this idea because I just finished Full Dark, No Stars by Stephen King and just started his 11/22/63.

Thirteen Favorite Stephen King novels


Pretend all these titles are underlined. It's too much work for me today! ;)

1. The Stand
2. It
3. Salem's Lot
4. Dolores Claiborne
5. Hearts In Atlantis
6. Green Mile
7. The Shining
8. The Talisman
9. The Black House
10. Carrie
11. Needful Things
12. The Eyes of the Dragon
13. Bag of Bones

Getting back to Full Dark, No Stars, Stephen King delivered four short stories of one type of horror or another. He always delivers, even though I think his writing has changed since he was hit by that van and nearly killed. I'm a devoted fan of his earlier books, which appear on the list above.

I wonder what kind of book King would write if he wrote about us.

This has just been one of those days.

It's raining so TB is in excrutiating pain.

He started to chew one of our bariatric supplements for omega three. These chews used to be soft and now they're hard like rocks. One of the caps on his teeth came out. I put my chew back because that's all I need. We don't have dental coverage and won't get any until January 1.

The last time this happened, over a year ago, TB glued the cap back in himself over and over. It worked for months and then he accidentally swallowed it and we couldn't afford a new cap. So now that tooth has been sitting there uncapped. This time we'll rob Peter to pay Paul to have the dentist glue it back in. Hopefully it will stay put permanently or at least until we can get the insurance.

I had an appointment to see the kidney specialist this morning. I'd scheduled it for soon after Kristin's class started and figured I'd be back in time for the last class to end 3 hours later. Okay, you guessed it. I waited an hour in the waiting room before being called back and then went through a lot of rigamarole only to have the doctor barely look at me, order up a bunch of tests and say repeatedly I should've been sent to an endocrinologist. I got out 15 minutes before Kristin's class ended and it's a half hour drive to the school. I was aggravated and frustrated and majorly stressed out.

The sound on our TV isn't working. We don't know why.

I forgot to take a chicken out for dinner last night so I took it out around six this morning. It's still frozen. I put it into a sink of cold water. Think it'll be thawed enough for me to cut it in an hour?

With the way today's been going, I doubt it. :P

Wednesday, November 9

First aid for a baby bird and other stuff


What do you do when a baby bird flies into your window and crashes to the ground? TB picked the poor little guy up and cradled it in his hands. We didn't know how badly the little guy was hurt and hoped it was just stunned. I found a box and we put a little water, birdseed, and some leaves into the box. TB gently put the bird down and it just did not want to let go of his finger, poor little thing!


We had to go out for a doctor's appointment. When we got back, we checked the box and it was empty. It looks like our little patient was just stunned and needed to rest before flying away! :)

We went to Good Will the other day for sheets. We were hoping to avoid buying new queen sheets just for this craft show. Good Will has everything and is a godsend for people in need. I like shopping there and don't mind the inconvenience of going through each piece of clothing to find my size. It's worth it! They also have everything from socks to bedroom sets and more. Anyway, we didn't find queen size sheets but we did find a set of three. I think they're full size but can be pieced together to make the size we need. It cost us only $6.99!

TB's been working almost around the clock to get ready for the craft show. I took a couple of pictures of the smaller items he's made and will bring.




My favorite is the mouse with cheese. TB took better pictures of his creations because he used a white backdrop. I plan on getting more pictures of the other projects the day of the craft show.

Yet again, I will need to call Medicare. TB and I want to compare health plans and hopefully go with one that has vision and dental. There are two in our area and when I discussed them with a Medicare agent named Jose they both seemed pretty good. He told me the monthly premium would be $84 for one and $89 for the other. I got a comparison report on those two companies from Medicare and was completely confused by the price breakdown. There were about a dozen breakdowns in different categories. Was I supposed to add them up? The report said the monthly premiums would be about $115 a month. What happened to the costs Jose gave me? So that is what I need to ask Medicare. What is the *real* monthly premium?

After that, we need to figure out if our doctors participate. In some cases, like with Dr. Greenbaum our bariatric surgeon, we're not going to want to switch to a stranger. Next, we have to figure out the cost of co-pays. Right now, we have no co-pay. If we switched, we'd save around $200 a month (I think) but then we'd have to figure how many times we see a specialist in a month. The specialist co-pay is $25 or $35. I think I would need a specialist once a month as long as I'm healthy. Switching might be a good option for me if it means I can get dental and vision.

Today I'm calling our doctors to see if they participate in either of these two plans. It's especially important for TB that they do!

This week I'll be thinking about whether I want to push off PTSD therapy to the new year. Susan, my therapist, insists that digging around in all these memories is supposed to dredge up all these feelings and reactions. That I've not reacted with strong emotion nor cried tells her that I'm resisting and using my defenses to stay away from painful memories.

I'm sure she's right because most of the painful stuff either feels like it's in a block of ice in the freezer or in a box stuffed into the back of a closet.

Well. Maybe what I should decide is whether it's worth trying to tackle all that PTSD stuff period. It took me over 50 years to build these walls and defenses and I don't think much will change in a 12 week program. So, I'm thinking...

And while I'm thinking, I've decided I like the Black Friday movement to boycott all but the independent businesses and stores for Christmas shopping. Big name brand stores make tons of money and don't treat their employees well. I suppose the little independents treat their employees similarly which makes me mad but I think I'd rather support them than the big chain stores who could afford to behave better toward their workers. Maybe what I'll do is just boycott everybody and make my own gifts!

On Facebook, I share pictures that resonate with me. Today there was one that pissed me off. It listed the outrageous salaries the president and members of congress earn *for the rest of their lives* and then lists the average social security salary of a senior as $12,000. And it's some of these senators and congresspersons who want to mess with social security and medicare. You'd never see them say anything about reducing *their* forever salaries!

Friday, November 4

Thursday Thirteen Random Thoughts on Friday

I meant to post this yesterday using the meme format but I just never got the time to sit down and do it. I'll get to that in a minute.

1. So Bank of Satan, I mean, Bank of America, is thinking about dropping the idea to charge all its customers $5 a month for using debit cards. They say it's because of all the feedback from their customers. Ha. I'd like to think it has something to do with November 5 switch-from-a-corporate-bank-to-a-credit-union day. I heard some of these other banks that were jumping on board with BOA are also reconsidering. Thank you. How much money did we spend on bailing out BOA and other banks again? They're making nice profits and what do they want to do? Squeeze more money from all of us!

2. And don't get me started on those obscene bonuses executives of other corporations bailed out are receiving!

3. Part of the reason I didn't get to blog was because TB and I were busy going to Walmart and Lowe's to get a couple of things for the craft show on November 12. This venture is costing us. It's not expensive if you've got it but we're using money that would go to other stuff. TB needed things like lemon oil, sand paper, cash box, queen size sheets ... Yes, queen size sheets. I think we're going to borrow them from his mom. They're to cover the table from top down to the floor. The lady running the event said she uses queen size sheets so it should be good.

4. I'm seeing "Blithe Spirit" with Kristin on Saturday night. She's treating me, which is really nice. She's taking drama this semester and one of the requirements is that students have to take in a play. It's been quite a while since I've seen a play...maybe almost two years. Tickets for non-students is only $10 so Bill wanted to join us. I'm looking forward to this!

5. I'm relieved that Dr. Greenbaum was pleased with how TB's doing after his most recent appointment. The abdominal wall infection cleared up and the seepage from the incision slowed down considerably!

6. We're having a hard time remembering to finger stick first thing in the morning! Our sugars have been running over 100 lately so the doctor wants us to test for two weeks before deciding what else to do. After testing several times a day for years, you'd think this would be old hat to us but I guess two years of freedom from it all has totally erased all the old habits. If we forget to get the fasting level, we go for an hour after the meal. I'm kind of bummed that the levels have been above normal.

7. Another reason I didn't have time for blogging is I had a therapy appointment. She thinks I am depressed again. Really? I think it's situational. Yes, I'm stressed. There's a lot going on. I don't think there's a pill for that. I take a nap to escape the stress.

8. Christmas decorations in October? If you looked, you could see them lurking in the background. The Halloween decorations barely came down before the Christmas ones went up. Does anyone else get depressed about this stuff? I mean, what about Thanksgiving? Can't the stores wait until "Black Friday" weekend to start all this commercialism? The arrival of Santa at malls was traditionally after Thanksgiving. Now it could be anytime in November. I was in the middle of filling out this survey for B101, a radio station in my area, and they want to know when did I want to start listening to Christmas music? Now? November 15? After Thanksgiving? I was about to say after Thanksgiving but then I thought if I have to be subjected to all this other crap now, why not enjoy the music? Holiday music does lighten my mood considerably.

9. Now I'm rating Christmas songs for B101. There sure are a lot! It doesn't seem like they all get played because in past years if feels like I just hear the same ones over and over.

10. Kristin's taking ASL 101 this semester and it's fun to practice with her. Her signs are nice and clear and her face is very expressive. I'm glad I can help her practice. She's doing very well in this class.

11. I'm still working on that Christmas song survey for B101. I wonder if they'll pay attention to my results? I wonder if anyone else had the patience to sit there and rate all those songs?

12. Why does trying to find the best insurance plan/a doctor have to be so darn difficult? We're still trying to figure out our medicare options, waiting for the information about the insurance companies to come in the mail. Also: Kristin was on the phone for about an hour trying to find doctors that would take her insurance. We'd first called the insurance company and they passed us off to the "preferred provider", whatever the hell that means. The preferred provider at least was more helpful. The representative got on the phone with the gynecologist's office and finally got them to understand who they were. The doctor's office then agreed to make an appointment for Kristin. As for the other doctor, well, we struck out and so the rep is doing a search among nurse practitioners to find an appropriate doctor. Don't ask me why nurse practitioners are doing this. I have no clue.

13. I don't think there's an end to this Christmas song list on B101. I'll probably be here tomorrow too! ;)

Friday, October 28

Assistance

There have been a lot of commercials on TV directed at Medicare recipients. Our open enrollment is going on right now. This is the first time ever I can remember commercials from insurance companies as well as Medicare itself inviting people to call and get assistance figuring out which program is best for them. The insurance companies, of course, are pitching themselves. One that intrigued me is a company called Highmark, which claimed to have vision and dental coverage.

I looked all over for information about Highmark and looked through the Medicare book we were sent. There's nothing about Highmark so I called Medicare. The first thing I wanted to know was how they could claim to have vision and dental when my company claimed no one could offer it. Well, it turns out there are categories of insurance. It's all very confusing and you really do need someone helping you figure it all out.

I told the lady we needed dental and vision and she found two companies in our area that can give us that coverage. Highmark, unfortunately, is not in our area. Anyway, she is sending out all the information so we can decide whether we want to switch or not. It's going to depend on the premium, co-pays, and what doctors participate with the plans. I'm so hoping that one of these plans will fit our needs!

A very nice thing happened just now. TB was interested in participating in a craft show at his mother's senior development complex. He wanted to bring his projects over and get exposure and possibly some orders. Well, unfortunately, this was when his tooth needed to be taken care of and we just did not have the $25 fee for a table. The lady running the event just called because someone else had to bow out and instead of getting a refund, just said to keep the fee. The lady thought of TB and called to ask if he'd be interested in that table. Boy howdy! Now he is going to get busy making holiday items. The craft show is Nov. 12.

From checking around, I found out the college Kristin goes to has a health services office that treats all kinds of issues. There's a nurse practitioner there that can prescribe medications for illnesses and other issues. That would be a big help for Kristin, whose college health insurance policy covers up to $5,000. That can go real quick in some cases.

As for other forms of assistance, we don't qualify because our income is just over the limit. The programs (like heat assistance) are there for the very needy and it's a good thing they are. It's tough for us because we sure could use the help but don't qualify. So we try to find programs and places like Angel Food Ministries (which is now closed) or food pantries. There is such a demand and need for food pantries!

I have a feeling we'll have to turn the heat on this weekend. It's supposed to snow on Saturday! Snow before Halloween!

Wednesday, October 19

Miscellaneous Stuff

Today TB is having hernia surgery. He's not allowed to eat or drink anything, not since midnight last night, and so he's pretty out of it. Originally we were supposed to go to the hospital at 9. TB was supposed to see his orthopedic doctor and had to cancel that appointment. Then around 7:30 the hospital called and changed the admission time to 11. It was really annoying because TB needed a refill of his pain medications.

It's so hard to watch him suffer. I'm helpless because there's nothing I can do. His tooth is especially causing a lot of agony and he'll chew a percocet and put it into the broken area. Sometimes that helps relieve the pain but not always. Then there is the chronic pain he has from busting his hump for an ungrateful employer all those years. Funny...you think you're doing the right thing by working hard but then you learn quick what a mistake it was when you get kicked to the curb after becoming disabled. I wish surgery would help the pain in TB's back but the doctors say it won't.

I think Occupy Philadelphia at least is becoming more organized and trying to set goals. I gave feedback about which issues I felt were most important and what I thought protestors ought to do about it. I hope they hear back from a lot of people. I really want to see this movement take off. One thing I would like to see is lobbying for healthcare for everyone. Poor people should be able to buy into a policy they can afford. I'd also like to see that fair trade act repealed--the one that gives credits to businesses allowing them to outsource. Even if we can't bring back the jobs already lost, let's save future jobs from going overseas. I've heard about another company laying off all their workers and setting up in the far East.

I heard the tail end of a story about a possible COLA for social security recipients--the first one in years--of about 3%. For a person now receiving about $1,000 a month it would mean an extra $30. Wow! With it, I can order a monthly supply of the bariatric vitamins TB and I need. Or we could get one half tank of gas. Something is better than nothing, which is what we've been having.

Speaking of bariatric surgery, TB and I had our annual visits with the surgeon and we're both doing great! I've lost 87% of my excess weight and TB 76%. My calcium was a little low so my PTH (thyroid) level was high. I need to take more calcium, no biggie. We both were low on Vitamin D so we need to boost the levels we take. No biggie, just means the vitamins will be a little more expensive.

Kristin decided to carry a double major. She met with an advisor to talk about what she needs to take to fulfill all the requirements. Kristin already had a schedule for herself mapped out for the near future and had questions written down so she wouldn't forget what to ask. I was really impressed with her organization!

Munchkin may be a bit of a bully but we still love her. One of the things I love most is when I nap or sleep. She will go under the covers and snuggle with me. I fall asleep stroking her fur. It's very soothing. The cats like to hang out on our bed. Many times we have five of them lounging around and it seems to be the one time they all get along!

Time to get ready to go to the hospital!

Monday, October 17

TB's Tooth and Health Insurance

Today TB's got an appointment with the dentist he used to see before we lost our insurance. Except for the dental schools, of all the places we called, this dentist had the least expensive cost for extracting a tooth. TB prayed that the dentist would be compassionate and let us have a payment plan so that maybe he could save the tooth but I don't have a good feeling about it. Maybe we should have gone to the dental school instead, I don't know. Maybe it's better to go locally because of the cost of gas.

All this plus the fact that my kids are uninsured or under-insured reminded me of another cause I got involved with after Rich had heart failure and needed surgery in the 1990s. At that time, Bill Clinton was in office and his wife Hillary Clinton was working with a group of people to put together a comprehensive plan to help people with little or no insurance. It was an uphill battle.

I marched around on union picket lines in a couple of places. They were picketing not for wages but because management wanted to cut benefits. While on one of these lines, I happened to get interviewed by a radio reporter and told him our story. The next thing we knew, we were part of a story for U.S. News and World Report and we got interviewed for a segment of the David Brinkley Hour.

So here's my feeling about health insurance--in a country as wealthy as ours, there is no reason anyone working should be uninsured. If a person is disabled or very poor, they're covered by Medicaid. The working poor and lower middle class and others aren't always covered by insurance and don't make enough to afford insurance premiums. There should be a program for these people to get decent health insurance. Insurance is cheaper when people are grouped. So there should be a large pool of college students and of part-time employees. But they're stuck with expensive individual policies.

I supported Mrs. Clinton's plan. It failed.

I supported President Obama's plan, especially the public option. That would have gotten insurance for my kids. It failed. What passed is, in my opinion, not particularly helpful to anyone.

Why can't we get reform for health insurance? I think it's because we people have no power. I think to get anything positive done you need lobbyists and they cost money. Otherwise, the drug companies and insurance companies will just continue to heavily influence Congress.

I feel pretty jaded about trying to get changes to make life better for us. But I continue to try because I can't sit by and do nothing.

Later: Well...that was nice. It cost $60 of the money scraped together for the visit to pull the tooth for the dentist to look at an Xray he brought and decide not to do anything because the tooth is still infected. Their idea of "working with us" and "payment plan" involves getting a credit card. Ha! First of all, our credit is virtually destroyed and second of all we either might not get the amount we need OR the monthly payments might be too high for us.

TB is depressed and upset. He's been praying and praying for relief from the pain and to get his tooth fixed or extracted. I'm just mad. This is one of those days I think God is with the 1% or He's the CEO of Bank of America.

I've heard from other people so I know we're not alone suffering like this. I feel like the downtrodden people in the movie Network who got sick of it all and opened the windows to yell, "I'm as mad as hell and I'm not going to take it anymore." A futile thing to do, but it helps with the anger.

Friday, October 14

Which bright lights decided this?

Way back when, I'd asked our Medicare Part D counselor about dental insurance since Medicare didn't cover it. He answered that getting dental insurance was way expensive and it would be cheaper just to pay out of pocket. Maybe he's was right then but we sure need the insurance now. I called Medicare to find out if they'd cover Ted's broken tooth since it's now an emergency and they said no.

I next called our secondary. Sometimes when the primary doesn't cover a service, the secondary will pick it up. That's when I discovered the dismaying news that the secondary is not allowed to. If it's not covered by Medicare, none of the secondaries can pick it up. I asked why and the representative could only tell me that's what the people in Washington decided.

Sure. These are the same people who enjoy full coverage of any type.

It makes no sense to exclude dental and vision from the elderly and the disabled. All of us need cavities filled or teeth pulled or root canaled or what have you. When a tooth goes bad and becomes infected, that infection can spread to the heart. That would lead to an emergency room visit and probably a hospital stay, maybe even death, and sure that's more costly than providing for routine visits so it never gets to that point. As for glasses, what's up with that? The older you are the more likely you are to need glasses. What are fixed income people supposed to do if there's no generous Lion's Club in the neighborhood? Drive around half blind? I guess so.

Hearing aids aren't covered either. As we get older, our hearing diminishes. TB is already pretty much deaf in both ears. Luckily he got hearing aids before he became totally disabled. I guess everyone else just has to take ASL classes. :P

If I ever get to the Take Over Philly protest, my signs would be about health insurance reform. I would like to see President Obama's original health bill passed but I think that will never happen unless there's a major rising. The Take Over movement has the right idea but they're not focused. Everyone's protesting different things and there's no real unity. People are just fed up with everything but I don't know that change can come of something that generic. :P

Monday, October 10

A Bag of Apples

The growing nationwide protests against corporate greed is beginning to remind me of the protests of the '60s and '70s. I remember the news coverage but wasn't really sure what to think. I was too young and immature to really come to any kind of conclusions about them.

In 1976, though, I was 21 and participated in a demonstration and sit-in at the then HEW (Health, Education & Welfare) building in Washington, D.C. The protest was because the regulations for the Vocational Rehabilitation Act of 1973 were still unsigned. This was a law that was supposed to stop discrimination against the disabled in the educational and workplace settings. It was a good law but couldn't be enforced because the HEW Secretary hadn't signed the regulations. After all these years, I don't remember why he hadn't and I don't remember why he wouldn't when the "oversight" was pointed out to him. The disabled community got fed up--pretty much the way the dwindling middle class has become fed up.

I was working at the National Center for Law and the Deaf. My boss was the executive director. We had lawyers working there that took on all kinds of cases, mostly having to do with discrimination. My boss was more on the advocacy end. Anyway, he called a meeting with all of us and explained the upcoming protest. If we decided to go along, we'd be picketing outside the building--with the possibility of going in and sitting in overnight or for days--as long as it would take to get Secretary Califano to sign the regs. My boss said it was all intended to be peaceful but that there was a good chance we'd be arrested for trespass if we sat in.

I decided to go. I'd seen my parents suffer discrimination almost everywhere and some of the experiences were pretty humiliating. I knew other Deaf people also were oppressed and had been discriminated against. I was young and the thought of jail didn't scare me.

There were hundreds and hundreds of people at the protest. Hundreds were blind; hundreds were in wheelchairs; hundreds had all sorts of disabilities. We carried signs and marched. At some point, I saw my boss meeting with the leaders of other groups. He came over to us and said a group was going to go into the building. Two Deaf employees and I volunteered to go in with my boss and the others. The leaders of the other groups were asking for their own volunteers. There was at least 20 of us going in.

When we got to Secretary Califano's office, my boss asked to meet with him. Mr. Califano's secretary looked at us with an expression of amusement and confusion. She informed us that Mr. Califano was out. Of course. So we all sat down on the floor.

It was later in the afternoon. I'd only brought my purse and a jacket with me. I was wondering if I should have brought more stuff...like food. The two Deaf employees, Susan and Fred, were friends of mine and sat down next to me. We spent the next few hours just chatting. I saw my boss conferring with Deaf leaders Fred Schreiber and T.J. O'Rourke. Around 4:30, the secretaries packed up and left for the day. We were on our own--or so we thought.

Within the hour, the police had shown up. Until then, we'd freely gone to get a drink of water from the fountain or go to the bathroom. The police wouldn't let us anymore, except for once an hour. For some reason, they wanted us to take our shoes off.

My boss used the phone--this was before cell phones!--to call a pay phone outside. He and the other lawyers had previously arranged this system to be used in case we went into the building. He could get news from the street this way. Around 7, he asked one of the lawyers to order pizza for everyone in the building.

About an hour later, the lawyer called from the pay phone and told my boss the pizza delivery guy had been stopped at the door. No one would be allowed in. Well, of course we should have anticipated that.

Fred Schreiber and T.J. O'Rourke were both excellent storytellers and that was our entertainment for the evening. Trying to tell a Deaf story in writing just loses too much in translation. There's a lot of facial expression and feeling that goes into the stories. You have to see it to appreciate it.

I remember one tense incident though. Schreiber's wife showed up with his prescriptions and the police wouldn't let her come in. They didn't want to bring the medication themselves either. We found out, of course, by a call from the pay phone. I remember my boss got on the phone with the policeman in charge and arguing with him. Politics and position mean everything, though, because Schreiber got his medication when my boss said, "Do you really want the president of the National Association of the Deaf to possibly die because you wouldn't let him have his heart medication? There's press outside all over the place!"

It was hard to get comfortable because we had to sit or lie down on the floor. The lights stayed on. The air conditioning was turned up full blast. We knew all of this was designed to make us uncomfortable and leave. The thing is, we felt totally committed to our cause. We'd tried to get the regs signed the proper way and had been confounded time after time. All around the country, the disabled and advocates had gotten fed up. There were sit-ins in other HEW buildings as well.

Around 2 in the morning, I rolled my coat up in a ball and went to sleep. My two friends curled up on either side of me. We didn't sleep soundly but we got some rest.

I woke up around six the next morning and sat up sleepily. The elevator doors opened and an elderly man stepped out. I recognized him as an employee of HEW. He approached us with a bag in his arms. The police standing guard didn't really notice him right away. When they did, they moved on him and that's when he threw the bag into the room with us.

Apples began bouncing everywhere as a couple of cops grabbed that elderly man and threw him against the wall. Other cops ran into the room, grabbing for the apples and snatching them out of the hands of the protestors. It was the craziest thing I'd ever seen. I think the cops got all the apples back. They pushed the elderly man into the elevator and I had no idea what was going to happen to him. After the whole thing was over, I found out he'd been ejected from the building. He'd heard we had no food and had bought the apples from a produce stand.

We didn't stay inside the building very long after that. Too many protestors had health issues and so we ended up leaving.

As a result of the protests, though, Secretary Califano signed the regulations. I felt like I'd been a part of something important.

I've been thinking about going down to Philadelphia just for the day. My sitting in days are over but I can do other things.

One thing that made me mad this morning was a sign I saw about how teachers making $50,000 (which ain't a lot) are being asked to take a salary cut of 20% but God forbid we should ask millionaires to pay 3% more in taxes. That totally gets me. It's not just teachers--it's a lot of workers from what used to be the middle class. They have to take cuts in salary either directly or by paying more health insurance costs. Yet Congress has all their benefits paid for 100%, enjoys a healthy salary and retirement. Don't even get me started on the benefits and perks corporate millionaires enjoy! I can think of a couple of signs I'd make!

Sunday, October 9

Some days...

...I feel pretty bitter about the way things are going for TB and me. Some days I feel like God's not there or "has better things to do" than bother with the likes of me. Sometimes it feels like he's the CEO of Bank of America. Then there's other days when I do feel God's love or I use these little tricks to cheer myself up or help me cope. These would be things like, "It could be a lot worse", "a lot of people are having hard times too", "count your blessings", or I'll read my favorite poem by Langston Hughes, "Mother to Son."

Some people just seem to be loaded down with more burdens and bad luck, though, and that's us. My mother thinks a curse was set on my family because my dad said he was an atheist. I don't believe that although some days it sure does feel like there's a curse. It's one thing after another and it's relentless, these things that happen to us. As if all that wasn't bad enough, both TB and I lost our spouses. It just goes on and on.

The protest movement against government and big business has been spreading across the country. It really lit up some anger in me because of all the corruption and greed in big business. For them it's only about the bottom line and profit, and it doesn't matter when it hurts the little guy--like when government decided to give business a big break and allow them to outsource jobs starting over 10 years ago.

TB and I have worked hard since we were teenagers. We went above and beyond because we were of a generation that took pride in what we did and doing our best for the boss. We set aside money in annuities for our retirement so we wouldn't have to depend on social security--a program we contributed heavily to for 30 years or more. Both of us got injured on the job working as hard as we did. Let me tell you, you find out real quick that they appreciate the hard, injury causing above and beyond work only while you're doing it. When you can't, there's no appreciation or loyalty. You're thrown out like trash. In the last 4 years, the annuities dwindled away. So much for our retirement.

We see other people go to the dentist and eye doctor with seeming ease. We haven't been able to get our eyes checked since TB became disabled. We can't afford to get new glasses and we don't have insurance for glasses. The same thing is true with dental visits. Medicare doesn't cover it and neither does the secondary insurance we pay hundreds of dollars a month for. Dental insurance itself is prohibitively expensive. I wonder if eye glasses and dental care are excluded from Medicare because so many seniors do need these services?

It makes me mad to hear politicians call Medicare an "entitlement" or a "Ponzi scheme". I paid into that fund my whole working life. It doesn't seem right that TB and I wouldn't be able to get our teeth looked after when we've contributed so much.

And don't get me started on what the kids are going through. Under employed and uninsured, we need them to help us survive because with expenses going up and our income frozen, we don't have enough to make it on our own. The five of us are tied together, no one being able to manage independently. Argh.

Oh well. Today I am just telling myself again, lots of people are having a hard time right now. I got a letter from my mom yesterday. Much of it was guilt inducing or confused crap but she also forwarded this great poem:

It's Fine Today
by Doughlas Malloch (1877-1938)

Sure this world is full of trouble
I ain't said it ain't
Lord, I've had enough and double
Reason for complaint;
Rain and storm have come to fret me,
Skies are often gray,
Thorns and brambles have beset me
On the road--but say,
Ain't it fine today?

What's the use of always weepin,
Makin trouble last?
What's the use of always keepin;
Thinkin of the past?
Each must have tribulation--
Water with his wine;
Life, it ain't no celebration.
Trouble? I've had mine--
But today is fine!

It's today that I am livin,
Not a month ago.
Havin, losin, takin, givin,
As time wills it so.
Yesterday a cloud of sorrow,
Fell across the way.
It may rain again tomorrow;
It may rain--but say,
Ain't it fine today?

I have to say that today is a fine day.

Friday, October 7

If I Wasn't Disabled...

...I'd get myself a tent and sleeping bag and go join the Take Over Philadelphia protestors. I am fed up and disgusted with government and big business too. As it is, I don't think I could handle being out in the elements with everything I've got going on.

I am so mad about what happened to TB yesterday. I blogged that he had a cracked tooth that he'd kept to himself for about a year because he knew we didn't have the insurance or finances to fix it. He told me about it when his jaw began to hurt relentlessly. I called the clinic in town--the one that serves those on a fixed income and who have little or no insurance--and got an appointment. I told them he'd probably need his tooth pulled because it's broken. TB went to the regular doctor meantime and got a script for an antibiotic. Tooth infections can cause all kinds of problems for the heart.

So we go for the appointment yesterday and wait for an hour before he's finally called. They took an Xray of the broken tooth and then the doctor tells him sorry, he's got to go elsewhere for either an extraction or root canal. The doctor says the clinic has stopped doing extractions and root canals. I wish someone had bothered to tell me that when I called 2 weeks ago to make the appointment! I would have called one of the recommended dental schools right off the bat.

That's where we have to go ... to a dental school in Philly or in Newark.

That's why I would join the protestors if I could. TB and I haven't had a COLA in three years but our expenses for everything keeps going up. It gets harder and harder to manage and if there's an emergency, we're screwed. The people who are protesting are basically in the same boat. They're under-employed or unemployed. Maybe they have benefits but I bet many do not. They can't meet expenses.

Meanwhile, the wealthiest Americans continue to get tax breaks. The Republicans claim if we tax the wealthy and big business, it'll kill the jobs market. What a laugh and a half. These rich businessmen have been enjoying all these tax breaks and their wealth for years--since President Bush--and they haven't generated decent jobs for anyone! Instead, they take advantage of tax breaks to send what could be decent jobs overseas.

I don't think there's any middle class anymore. I think there is getting by, skirting the line of disaster, and poor.

I also think this protest is going to continue growing. People have really had it. I know I have!

Thursday, October 6

Update

I've been absent for nearly a month, for many reasons. One has been a sort of "brain freeze" for writing. There's been a certain blahness and sameness to the day-in day-out stuff and the pains of financial struggles. I do want to get back into blogging more regularly though and thought to start out with an update.

Poor Cubby developed a horrendous infection in his tail. We're not sure how it happened but suspect that Munchkin may have scratched or bitten him. We didn't realize anything was wrong until the infection had progressed so far the vet thought Cubby might lose part of his tail! TB and I had him isolated in the office to keep him away from the rest of the gang. We were applying medication to his tail and giving him oral antibiotics. We had compresses on his tail to help the infection drain. We sat with him a lot to keep him company and so that he wouldn't knock off the compresses or worry his tail. Well, it all paid off because he's healed beautifully and didn't lose his expressive tail!

I was in a great deal of pain one day and ended up going to the emergency room with TB. It turns out I had a kidney infection. I had a cat scan of my kidneys and there might be an adenoma on the left side. I also seem to have a hiatal hernia which isn't really bothering me. Anyway, I'm seeing a kidney specialist about the adenoma later this month.

TB's in more pain than ever because he has this cracked tooth that has exposed the pulp. I persuaded him to go to the doctor for an antibiotic while he waited for a dental appointment. It's true he should have gone to the dentist when it first cracked but, he told me, it didn't hurt and we didn't have the money for the appointment. We don't have dental coverage. Now, though, it's become critical and so we called for the earliest appointment. It's today. Also today, TB's seeing the kidney specialist because he's got a lot of protein in his urine. It could be damage from the diabetes he'd had for so many years ... or maybe he's just taking in too much protein.

I was doing more chauffeuring than usual in the last 2 weeks due to broken down cars and what have you. No one can afford to get a car fixed, including TB and me. Luckily the car trouble Heidi had seemed to be related to a disconnected hose and was easily fixed.

I started working with my therapist on PTSD issues and my writing. I'm hoping this 12 week program helps. So far I'm not noticing a difference.

Here are the two memories that most interfere with my writing:

When I was a little kid--maybe 2nd grade--I wrote this story about a couple of kids, a talking black-eyed Susan and a magic flying carpet. Apparently my teacher submitted it to a local paper and they published it in their Sunday magazine. My teacher told me about it and I went home proudly and told my mom. She didn't believe me and got really angry with me, calling me a liar. No one would publish one of my stories in the paper! I felt confused and ashamed and scared. The next day, the teacher wanted to know what my family thought and I told her they didn't believe me. She gave me the magazine to show my mother. My mom apologized but it was sort of too late. I already doubted whether or not I could really write.

The other memory is from when I was about 12. I would hide my writings in my desk. I came home from school one day to find my mother holding my notebook in her hand, spitting fire and rage in her eyes. I'd been writing about a family with an "evil" stepmother and apparently my mom recognized herself. I didn't think I'd intended to write a story about my mother and actually remember very little about it except denying frantically that the stepmother was my mother. It didn't feel safe to write anymore and that's when most of the freeze started.

Sometimes I have strong bursts of inspiration and I have to write. I had one of these bursts ten years ago, when I wrote some fan fiction. Other times I've had some inspiration but it's but rare and far between. I know I can do it, though, because I took a creative writing class and, under the pressure of a deadline, I was able to produce.

The rest of the time, though, I'm just filled with doubts and self-recrimination.

Well, with this therapy, I'm supposed to read the memories over every day to lessen the impact. I also pick out different incidents, write down what happened, what I tell myself, and what I think as a result of all of it.

I thought about tracking my progress over the remaining weeks of therapy. I guess we'll see if I follow through with it!

Thursday, May 20

I'm about to scream, wail & gnash my teeth...

...because my husband needs stuff we can't afford. Those who have great medical coverage won't get it. Those who are in the same boat as us are probably going through something like this.

TB needs Cymbalta for the pain he's in all the time. It helps him not need so much morphine and percocet. The trouble is the cost because it's a name brand and there's no generic. It's expensive now with the crummy plan we have. Once we fall into the doughnut hole it'll really become unaffordable.

It's the same thing with testosterone. TB's tired all the time and needs to boost his levels. In addition, if he doesn't have enough he could suffer bone loss. You'd think this hormone is readily available in a generic--but it's also very expensive. And we'll have the same problem when we're in the doughnut hole.

With our luck, wouldn't you know that as soon as we pulled up from the doctor's office today the frames on TB's glasses broke. Know how expensive frames and lenses are for people with heavy duty prescriptions? The eye exam is probably covered but not a dollar for the frames or lenses.

So. TB has to have the glasses. As for the prescriptions, we are left with the choice: does TB go without or do we just stop paying someone? Like ... the mortgage company? I don't know that TB will get into one of the prescription programs offered by the manufacturers because they tend to be for those unfortunates without any insurance at all. So, once again, we are left with some tough choices.

This is one reason why we needed health insurance reform ... and it probably ain't gonna happen.

Thursday, July 24

Here in America

No lie, the phone starts ringing at just after 8 a.m. and doesn't stop until well after 9 p.m. They're dunning phone calls and we've told these creditors our story over and over and over. They still call every single day and it's really worn us down. Some of the creditors are really nice and others are really nasty. Still, how many times do we have to tell our story before they finally get it? The story doesn't change from one day to the next: we're sorry, we have no money, TB's been out of work since September, we've run through all our savings trying to stay current and now that moeny is gone, no, we don't know when we're going to get any more money, no we don't want to postdate a check for next week or ext month, why would we do that when we don't know when we're going to get any money?

Lately we figured a way to duck the calls of the creditors. We turned the volume down as low as it can go. We've assigned a tune to the phone numbers of people we want to talk to so that when we hear it, we pick up. Otherwise, we just leave the phone. I think it's frustrating them because they've begun to leave computer-voiced messages and to send us letters "we've been unable to reach you..." We get a small bit of satisfaction from that.

On the upside, the house passed a bill that might help us out of the mess we're in--at least where the house is concerned. I don't want to get my hopes up. The Senate has to vote on it, the President has to sign it and then I will call our mortgage company to see if they'd be willing to refinance our loan under the terms of the new bill.

The other day I read an article that saddened and angered me. The focus of the story was that as people become homeless or are faced with homelessness, they become determined to vote so that their voices are heard. These are the facts that upset me:

The U.S. government estimates that more than 400,000 people around the country sleep in homeless shelters each night, with many more on the streets, under bridges and in parked cars. Advocacy groups say that some 3.5 million Americans will find themselves homeless at some point in a year.

As home foreclosures passed the 2 million mark last year, organizations offering emergency accommodation say they are fielding more calls from families facing homelessness as they struggle to keep up with mortgages, rent and bills.


I saw news stories on Sixty Minutes and on another program about organizations that sponsor a two day medical-and-dental clinic for people who have no insurance. It was appalling to see the hundreds and hundreds of people who lined up early hoping not to be turned away.

This should not be happening in America. I feel that these are possibilities that TB and I and my family are looking at soon if we don't get the help we need.

Getting back to homeless voters, they want to make their voices heard but it's not easy.

Many may have no permanent address from which to register. Others have lost track of the identification documents that they need in order to obtain voter cards, such as Social Security cards and birth certificates.


The whole article is here.

The Sixty Minutes article on Remote Area Medical (RAM) is here.

How many of us are just a paycheck or two away from disaster?

Grace In Small Things

Blog Archive

Bloggers 50 & Over